PACES in Epilepsy (Program for Active Consumer Engagement in Self-Management)
What is PACES?
PACES is an in-person and phone-based program developed to improve self-management and related health outcomes in adults with epilepsy.
How does PACES work?
PACES consists of 8 weekly meetings of about 75 minutes. Meetings are conducted in person or over the phone. They are led by an epilepsy professional and a peer with epilepsy.
PACES provides a wide range of topics that are important to people with epilepsy:
- Epilepsy and other medical issues
- Stress and depression
- Memory and cognition
- Community participation on a budget
- Managing care
- Assertive communication
- Improving well-being
At each meeting, participants are encouraged to be engaged by taking notes, asking questions, and sharing personal experiences.
Each week, participants set a personal, achievable goal for the following week to improve how they deal with the challenges of living well with epilepsy.
Contact PACES Team
Robert T. Fraser, PhD
Neurology, Neurological Surgery, & Rehabilitation Medicine
University of Washington
Harborview Medical Center
325 9th Avenue
Seattle, WA 98104
Erica K. Johnson, PhD, CRC
Rehabilitation Psychology Consultant
University of Washington/Harborview Medical Center
Neurology Vocational Services Unit
325 Ninth Avenue
Seattle, WA 98104-2499
Publications about PACES
Fraser RT, Johnson EK, Miller JW, Temkin N, Barber J, Caylor
L, Ciechanowski P, Chaytor N. (2011). Managing Epilepsy Well:
Self-Management Needs Assessment. Epilepsy &
Behavior, Volume 20, Issue 2, 291-8.
Fraser R, Johnson EK, Lashley S, Barber J, Chaytor N, Miller JW, Ciechanowski P, Temkin N, Caylor L.(2015).PACES in epilepsy: Results of a self-management randomized controlled trial. Epilepsia. 2015 Jun 29. [Epub ahead of print]
View PubMed Abstract