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PAUSE to Learn Your Epilepsy for Adults with Refractory Epilepsy

Study team:

  • Dilip Pandey, MD, PhD, FAHA (Principal Investigator)
  • Jeffrey Loeb, MD, PhD (Co-Investigator)
  • Patricia Osborne Shafer RN, MN (Epilepsy Foundation/Beth Israel Deaconess, Consultant)

Project identifier:
SIP 14-007 : Managing Epilepsy Well (MEW) Collaborating Center

PAUSE LogoIn partnership with the Epilepsy Foundation, PAUSE (Personalized Internet Assisted Underserved Self-Management of Epilepsy) will provide patients with refractory epilepsy free access to a computer tablet and Internet service to test the combination of epilepsy educational information based on Epilepsy.com content with real-time (web-based) video conferencing with a health educator. Based on patient needs identified during a clinic visit, a healthcare provider will assign personalized educational content for the patient and/or a caregiver that can be reviewed at a customizable pace and with guidance from a trained nurse or health educator via web conferencing. 

 


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