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Scientific Presentations

The Managing Well Network shares its work through scientific presentations and posters at professional meetings and conferences. Presentations are listed by year.

2015

Chen J, Jobst B.  (American Academy of Neurology 67th Annual Meeting, Washington, DC, April 18-25, 2015): “Reducing Severity of Comorbid Psychiatric Symptoms in an Epilepsy Clinic Using a Colocation Model: Results of a Pilot Intervention.”

Fraser RT, Johnson EK. (17th Rehabilitation Psychology/American Board Rehabilitation Psychology Conference, San Diego, CA, February 2015):”The Program for Active Consumer Engagement in Self-management (PACES) in Epilepsy.”

Helmers S, Gupta S, Huang S, Berk A, Knoth RL. (69th Annual Meeting of the American Epilepsy Society, December 2016, Philadelphia, Pennsylvania): “Caregiver Burden: An Under-Recognized Aspect of Epilepsy Care.”

Jobst B. (69th Annual Meeting of the American Epilepsy Society, December 2016, Philadelphia, Pennsylvania): Cognitive and Behavioral Interventions for Epilepsy: Therapeutic Elements of Specific Psycho-behavioral Interventions.”

Jobst B & Fraser RT. (69th Annual Meeting of the American Epilepsy Society, December 2016, Philadelphia, Pennsylvania): “A Brief Overview of the Managing Epilepsy Well Self-Management Research and Interventions.”

Johnson EK, Fraser RT. (American Psychological Association (APA) Annual Convention, Toronto, Canada, August 2015): “The Role of Telehealth in the Program for Active Consumer Engagement in Self-management (PACES) in Epilepsy.”

Munoz L ( American Psychological Association (APA) Annual Convention, Toronto, Canada, August 9, 2015):“Comparing the Effectiveness of Project UPLIFT Among Younger and Old Adults With Epilepsy.” 

Rueda S, Sepulveda R, Chong J, Begley C, Shegog R, Labiner D. (69th Annual Meeting of the American Epilepsy Society, December 2016, Philadelphia, Pennsylvania): “Development of an Epilepsy Self-management Decision Support Tool: Spanish-Mindset.”

Secore K. (Annual Education Meeting of the American Association of Neuroscience Nurses, Nashville, TN, March 29-April 1 2015): “Design and Feasibility of a Memory Intervention with Focus on Self-Management for Cognitive Impairment in Epilepsy.”

Secore KS, Jobst B, Caller T, Roth R. (69th Annual Meeting of the American Epilepsy Society, December 2016, Philadelphia, Pennsylvania):”A Randomized Trial of HOBSCOTCH: HOme Based Self-management & COgnitive Training CHanges Lives.”

Thompson NJ, Walker ER, McGee R, Munoz L. (Georgia Public Health Association Annual Meeting, Atlanta, April 14-15, 2015):"Mental Health Advocacy Across Differing Ecological Levels."

2014

Bruyere SM., Fraser RT, Johnson EK, & Krause J.S.(Symposium presented at the 122nd Annual Meeting of the American Psychological Association, Washington, DC, August, 2014): "The role of psychology in improving employment outcomes for people with disabilities."

Caller TA, Secore K, Ferguson RJ, Roth RM, Alexandre FP, Kleen J,Harrington J, Henegan PL, Jobst BC. (American Epilepsy Society 68th Annual Meeting, Seattle, Washington December 2014):"A Randomized Controlled Trial Of HOBSCOTCH: A Self-Management Intervention For Cognitive Impairment In Epilepsy."

Escoffery C, Bamps Y, LaFrance WC, Stoll SC, Shegog R, Shafer P, Buelow J, Thompson NJ. (American Epilepsy Society 68th Annual Meeting, Seattle, Washington December 2014): "Development And Field-Testing Of An Epilepsy Self-Management Instrument For Adults With Epilepsy."

Fraser RT, Johnson EK, Lashley S, Barber J, Chaytor N, Miller J, Ciechanowski P, N. Temkin N, Caylor L.(American Epilepsy Society 68th Annual Meeting, Seattle, Washington December 2014): "PACES In Epilepsy: Results Of A Self-Management Randomized Controlled Trial."

Helmers S, Wagner J, Bamps YA (ETP/Shark Tank Competition Shark Tank, Epilepsy Pipeline Conference, San Diego, June 2014): "WebEase—Y: Enhancing Youth Epilepsy Management Behaviors."

Jobst, B. (Eastern Association of Electroencephalographers Annual Meeting, Bromont, Quebec, 14th February 2014): "A Pilot Study of a Self-Management Intervention for Cognitive Impairment in Epilepsy." 

Jobst B. (American College of Preventive Medicine Annual Scientific Meeting.  New Orleans, LA, February 23rd, 2014): "A Pilot Study of a Self-Management Intervention for Cognitive Impairment in Epilepsy."

Jobst B. (American Academy of Neurology 66th Annual Meeting, Philadelphia, PA, April 30th, 2014): "A Pilot Study of a Self-Management Intervention for Cognitive Impairment in Epilepsy."

LaFrance W, Bamps Y , S Stoll SC, Sahoo SS, Welter E, Sams J, Tatsuoka C, Sajatovic M. (American Epilepsy Society 68th Annual Meeting, Seattle, Washington December 2014): "Comparison Of Common Data Elements From The Managing Epilepsy Well (MEW) Integrated Database And A Well Characterized Sample With Nonepileptic Seizures."

Lhatoo SD, Sahoo SS, Zhang G, Bamps Y, Fraser RT, Stoll SC, Tatsuoka C, Welter E, Sajatovic M. (American Epilepsy Society 68th Annual Meeting, Seattle, Washington December 2014): "Managing Information Well: Towards An Ontology-Driven Informatics Platform For Data Sharing And Secondary Use In Epilepsy Self-Management Research Centers."

Sajatovic, M. (Second Partners against Mortality in Epilepsy (PAME)  Meeting. Minneapolis, Minnesota. June 22, 2014): "The role of self-management in managing epilepsy and reducing complications."

Sajatovic M, Ramsey RK, Welter E , Colón-Zimmermann K, Perzynski AT. (American Epilepsy Society 68th Annual Meeting, Seattle, Washington December 2014): "Barriers And Facilitators To Self-Management Among Persons With Epilepsy And Mental Illness."

Secore KL. (Annual Education Meeting of the American Association of Neuroscience Nurses, Nashville, TN, March 29-April 1 2015):” Design and Feasibility of a Memory Intervention with Focus on Self-Management for Cognitive Impairment in Epilepsy.”

Shegog R, Begley CE. (American Epilepsy Society 68th Annual Meeting, Seattle, Washington December 2014): "A Randomized Efficacy Trial Of A Clinic-Based Decision Support System For Epilepsy Self-Management"

Thompson NJ, Bamps Y, Selwa L, Stoll SC, Begley CE, Johnson EK, Fraser RT.(American Epilepsy Society 68th Annual Meeting, Seattle, Washington December 2014): "Depression And Isolation In People With Epilepsy."

2013

Begley C, Shegog R, Harding A, Newmark M, Goldsmith C, Hope O. (American Epilepsy Society 67th Annual Meeting, Washington DC, December 2013): "Longitudinal Feasibility Testing Of The Mindset Version 2.1: A Clinic- Based Decision Support System For Epilepsy Self-Management"

Caller TA. (Neuroscience Day, Dartmouth College, April 5, 2013):"Development of a Self-Management Intervention to Address Cognitive Dysfunction in Epilepsy"

Jobst, B.(ILAE Annual Convention, Montreal, Canada, June 2013): "Development of a home-based intervention to address cognitive dysfunction in epilepsy"

Jobst B, Caller T, Secore K, Ferguson RJ, Alexander FP, Harrington J, Roth RM. (American Epilepsy Society 67th Annual Meeting, Washington DC, December 2013):"Design And Feasibility Of A Memory Intervention With Focus On Self-Management For Cognitive Impairment In Epilepsy"

Kaiboriboon K, Bakaki P, Koroukian S.(American Epilepsy Society 66th Annual Meeting, Washington DC, December 2013): Patterns Of Pre-Existing And Concurrent Multi-morbidity In Persons With Epilepsy"

Kobau, R. (Panel 4, Epilepsy Across the Spectrum: Progress, Updates and Plans,Institute of Medicine, Washington DC, December 2013):"Patient and Family Education, Public Awareness and Collaboration: CDC"

Kobau, R. (Panel 3, Epilepsy Across the Spectrum: Progress, Updates and Plans,Institute of Medicine, Washington DC, December 2013):"Community Services: CDC-EF Cooperative Agreements"

Thompson NJ, Patel A. (121th APA Conference, Hawaii, August 2013): “Impact of Depression Intervention on Seizures in People with Epilepsy”

Thompson NJ, Patel A, Selwa L, Stoll SC, Johnson E, Fraser R. (American Epilepsy Society 67th Annual Meeting, Washington DC, December 2013): "Life Satisfaction Of People With Epilepsy"

Thompson NJ. (Professionals in Epilepsy Care Symposium: Access to Epilepsy Care Across the Spectrum, American Epilepsy Society 67th Annual Meeting, Washington DC, December 2013):"Managing Epilepsy Well: Addressing Access to Mental Healthcare Needs"

2012

Begley C, Shegog R, Harding A, Newmark M, Goldsmith C, Hope O, Coffman, V. (American Epilepsy Society 66th Annual Meeting, November-December 2012): "Longitudinal Feasibility of MINDSET: A Clinic-Based Decision Support System for Epilepsy Self-Management"

Caller T, Jobst BC. (American Epilepsy Society 66th Annual Meeting, November-December 2012): "Impact of a screening tool on management of psychosocial comorbidities in persons with epilepsy" (Abstract No 1.216)

Chaytor N.(American Epilepsy Society 66th Annual Meeting, Military Special Interest Group, November-December 20122012):" Managing Epilepsy Well: PEARLS, UPLIFT & WebEase"

Fraser R, Johnson E. (American Epilepsy Society 66th Annual Meeting, San Diego, California, Nursing Research Special Interest Group, November-December 2012): "Program for Active Consumer Engagementin Self-Management"

Helmers S. (26th Annual Advances in the Management of Epilepsy and the Epilepsy Clinic
Sponsored by Wake Forest University School of Medicine, San Diego, California, November 2012): "Epilepsy Self-Management: the WebEase program"

Helmers S. (4th Annual Emory Epilepsy Symposium, Atlanta, Georgia, November 2012): "Epilepsy Self-Management: the WebEase program"

Helmers S, Bamps Y. (Epilepsy Foundation Partnership Roundtable, Washington, DC, May 17, 2012): “WebEase (Web Epilepsy Awareness, Support and Education)”

Jobst BC, Harden CL, Scott RC, Fowler KM, Herzog AG for the Progesterone Study Group. (American Epilepsy Society 66th Annual Meeting, San Diego, California, November-December 2012):"Depression, seizure type and polytherapy with AED influence subjective memory in women with epilepsy" (Abstract No 1.210).

Johnson E, Fraser R, Miller J, Temkin N, Barber J, Caylor L, Ciechanowski P and Chaytor N.(American Epilepsy Society 66th Annual Meeting, San Diego, California, November-December 2012): "Provider and Patient Perspectives Of Epilepsy Self-Management Needs"

Kobau R. (Epilepsy Foundation Best Practices Institute, Denver CO, September 2012): “New Self-Management Tools from the Managing Epilepsy Well Network”

Patel, A, Ilozumba U, Thompson NJ (APHA Meeting, San Francisco, October 2012): "Disseminating a Public Mental Health Intervention"

Shegog, R, Begley, Harding A..(American Epilepsy Society 66th Annual Meeting,San Diego, California, November-December 2012):"A Clinic-Based Decision Support System for Epilepsy Self-Management"

Shegog R, Begley C, Harding A, Newmark M, Goldsmith C, Hope O, Dubinsky S, McLaughlin J, Williams D. (mHEALTH Conference, Washington DC, December 2012): "MINDSET: Management Information & Decision Support Epilepsy Tool"

Stoll SC.(American Epilepsy Society 66th Annual Meeting, San Diego, California, Nursing Research Special Interest Group, November-December 2012): "FOCUS on Epilepsy"

Stoll S, Gorelick A, Derry R, Selwa, Kelly R, Clark N.(American Epilepsy Society 66th Annual Meeting, San Diego, California, November-December 2012):"Skills for Better Support: Developing Self-Regulation Skills among Family Members to Improve the Quality of Informal Help Provided to Adults With Epilepsy"

Thompson NJ. (120th APA Conference, Orlando, August 2012): “Distance Delivery of Mindfulness-Based Cognitive Therapy: Project UPLIFT”

Thompson NJ. (Emory University, Center for Outcomes Research and Public Health, August 2012): “Managing Anxiety and Depression in Cystic Fibrosis (Project UPLIFT)”

Thompson N, Patel A, Selwa L, Begley C, Fraser R, Johnson E, Stoll S. .(American Epilepsy Society 66th Annual Meeting, San Diego, California,November-December 2012):"Preventing Depression in Epilepsy: Project UPLIFT"

(Thompson AES 2102 Presentation selected for Goldberg Kaufman Honor* )

Thompson N, Patel A, Selwa L, Begley C, Fraser R (2012 Science of Eliminating Health Disparities, Washington, DC, December 2012):"Preventing Depression in People with Epilepsy: An Extension of Project UPLIFT"

2011

Begley CE. (American Epilepsy Society 65th Annual Meeting, Baltimore, MD, December 2011/ Session on Overcoming Barriers to Successful Epilepsy Management).: “Health Disparities / Referral System Barriers”

DiIorio C.(Institute of Medicine Workshop on Quality, Access, and Education for the Epilepsies; June 28, 2011):"Education for Self-Management"

DiIorio C, Fraser R. (29th International Epilepsy Congress, August-September 2011, Rome, Italy): “The Managing Epilepsy Well Network”

Fraser, R., Johnson EK, Miller JW, Temkin N, Chaytor N, Ciechanowski P (29th International Epilepsy Congress, August-September 2011, Rome, Italy): “A Consumer Generated Self-Management Intervention Model”

Fraser, R. (Institute of Medicine Workshop on Quality, Access, and Education for the Epilepsies; June 28, 2011): "Vocational and Employment Services / Resources"

Shegog R,Iyagba B, Begley C, Harding M, Dubinsky S, Newmark M, Ojukwu N, Friedman.(American Epilepsy Society 65th Annual Meeting, Baltimore, MD, December 2011, Session on New Evidence in Psychosocial Interventions for Managing Epilepsy): "MINDSET: The Development and Testing of a Clinic-Based Self-Management Decision Support System”

Shegog R, Begley C, Harding M, Dubinsky S, Newmark M, Ojukwu N, Friedman D, McLaughlin J, Williams D. (mHealth Summit; December 5-7, 2011; Washington, DC): "MINDSET: Management Information & Decision Support Epilepsy Too"

Stoll SC, Gorelick AS, Derry , Selwa LM, Youatt EJ, Clark NM. (American Epilepsy Society 65th Annual Meeting, Baltimore, MD, December 2011): “FOCUS On Epilepsy: Development And Piloting Of A Program Designed To Develop Self Regulation Skills And Strengthen Social Support For Adults With Refractory Epilepsy”

Thompson N., Walker ER, Winning A. ( 9th Annual International Scientific Conference for Clinicians, Researchers and Educators, Center for Mindfulness in Medicine, Health Care, and Society.  April 1, 2011. Boston, MA). "Distance delivery of mindfulness-based treatment for depression: Project UPLIFT"

2010

Begley C, Shegog R, Iyagba B, Chen V, Dubinsky S, Newmark M, Ojukwu N, Friedman D. (American Epilepsy Society 64rth Annual Meeting, December 2010, San Antonio, Texas): "Socioeconomic Status and Self-Management in Epilepsy:Comparison of Diverse Clinical Populations in Houston, Texas"

Ciechanowski P.(CDC, Atlanta, August 2010):“The PEARLS Program. Community-Integrated Home-Based Depression Treatment for Older Adults and Adults with Epilepsy”

Ciechanowski P. (American Epilepsy Society 64rth Annual Meeting, Patient Reported Outcomes – Improving Mental Health Outcomes in People with Epilepsy through the CDC Managing Epilepsy Well Network – PEARLS and UPLIFT (Special Interest Group Meeting), December 2010, San Antonio, Texas):"The PEARLS Program"

Clark N, Derry R, Youatt E, Sweetman M, Stoll S. (American Epilepsy Society 64rth Annual Meeting, December 2010, San Antonio, Texas): "Managing Epilepsy: Perspectives Of Professionals With and Without Epilepsy"

DiIorio C, Reisinger Walker E, Bamps Y. (American Epilepsy Society 64rth Annual Meeting, December 2010, San Antonio, Texas): "Results Of A Randomized  Controlled Trial Evaluating WebEase, An Online Self-management Program"

Fraser R, Johnson E, Miller J, Temkin N, Ciechanowski P, Chaytor N, Caylor L, Barber J. (American Epilepsy Society 64rth Annual Meeting, December 2010, San Antonio, Texas): "A Consumer Generated Self-Management Intervention Model"

Fraser R, Johnson E (Multiple Sclerosis Research Conference on Self Management,Consortium OF Multiple Sclerosis Centers, Washington DC, November 2010):  "Managing Epilepsy Well (MEW) Research Network"

Garcia-Williams A, Walker ER, Humphrey A, Swain H & Thompson N J. (American Public Health Association. Denver, CO, November 2010): "Development and administration of a measure of knowledge and skills for Mindfulness-based Cognitive Behavioral Therapy"

Kobau R, DiIorio C, Bamps Y, Thompson N, Clark N, Begley C, Shegog R, Fraser R, Ciechanowski. (American Epilepsy Society 64rth Annual Meeting, December 2010, San Antonio, Texas): "Translating Research to Practice: CDC Managing Epilepsy Well Network"

Reisinger Walker E, Bamps Y, DiIorio C. (APHA, November 2010): "Social support for self-management behaviors among people with epilepsy: A content analysis of the WebEASE program"

Thompson N, Edwards A, Garcia-Williams A, Fraser R, Begley C, Selwa LM. (American Epilepsy Society 64rth Annual Meeting, December 2010, San Antonio, Texas): "Revising Project UPLIFT from A Treatment Intervention to a Prevention Intervention." Thompson NJ. (American Epilepsy Society 64rth Annual Meeting, Patient Reported Outcomes – Improving Mental Health Outcomes in People with Epilepsy through the CDC Managing Epilepsy Well Network – PEARLS and UPLIFT (Special Interest Group meeting), December 2010, San Antonio, Texas): "Project UPLIFT"

2009

DiIorio C.(American Epilepsy Society 63rd Annual Meeting, December 2009, Boston, MA): "Epilepsy Self-management"

DiIorio C.(American Epilepsy Society 63rd Annual Meeting, December 2009, Boston, MA): "WebEase: An Epilepsy  Self-Management Program"

DiIorio C.(American Epilepsy Society 63rd Annual Meeting, December 2009, Boston, MA): "Theoretical Aspects of  Epilepsy Self-Management"

Kobau R, Keene A, Eatough N. (American Epilepsy Association Meeting, December 2009): "Seize Your Strengths: A workshop to promote positive functioning in people with epilepsy"

Thompson NJ. (Emory University, Department of Psychology, November 2009): "Project UPLIFT. Main Outcomes Results" (Note: the results presented are preliminary and not final)

Thompson NJ. (National Center for Health Marketing, CDC, April 2009): "Distance Delivery--or Maybe Not: A Look at Project UPLIFT for People with Living with Epilepsy" (Note: the results presented here are preliminary and not final)

2008

Begley C,Shegog R, Talluri K, Chen C, Newmark M, Dubinsky S,Barnwell F, Wright R, Basu R, Lairson R, Reynolds T. (American Epilepsy Association Meeting, December 2008): “Socio-Demographic Differences in Self-Management and its Impact on Healthcare Use and Outcomes in Epilepsy”

Escoffery C, DiIorio C, Yeager C, McCarty F, Reisinger L, Robinson E, Wexler B, Henry T, Koganti A.  (Society for Public Health Education,May 2008): "An Online Epilepsy Self-Management Program (WebEASE): Development and Process Evaluation" 

Reisinger Walker E, Thompson N, ,Winning A,, Barmon C, Nieboer L, Obolensky N, Kobau R. (APHA, October 2008): “Mindfulness-based depression treatment through web and telephone groups”

 

 

 

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