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Find research publications supported by the Managing Epilepsy Well Network. Follow the links by topic to locate articles.

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Clinical Tools

DiIorio C, Reisinger E, Yeager K, Schomer DL, Henry TR, & Shafer PO. (2008). A descriptive analysis of seizure events among adults who participated in a computer-based assessment. Journal of Neuroscience Nursing. 40,124-141.
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Fraser RT, Ehde D, Amtmann D, Verrall, A, Johnson KL, Johnson EK, et al. (2013). Self-management for persons with multiple sclerosis: Report from the first international consensus conference. International Journal of MS Care. 15(2):99-106.
doi: 10.7224/1537-2073.2012-044
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Fraser RT, Miller JW, Johnson EK (2014). Epilepsy. In MG Brodwin (Ed.), Medical, Psychosocial and Vocational Aspects of Disability. Athens, GA: Elliott & Fitzpatrick.

Fraser RT, Miller WJ, Johnson EK. Epilepsy. (2011) In S Flanagan, H Zaretsky, A Moroz, (Eds.), Medical Aspects of Disability: A Handbook for the Rehabilitation Professional (pp. 177-94). Springer Publishing Company..

Fraser R., Strand D, Johnson EK, Johnson C. (2012). Applying neuropsychology in vocational rehabilitation intervention: Issues in work access and work return. In S Bush, G Iverson (Eds.), Neuropsychological Assessment of Work-Related Injuries. New York, NY: Guilford.


Epilepsy Self-Management

Helmers, S. L., Kobau, R., Sajatovic, M., Jobst, B. C., Privitera, M., Devinsky, O., Labiner, D., et al. (2017). Self-management in epilepsy: Why and how you should incorporate self-management in your practice.Epilepsy & Behavior, February 12, 2017.
doi: 10.1016/j.yebeh.2016.11.015

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Escoffery C, Bamps YA, LaFrance WC, Stoll SC, Shegog R, Buelow J, Shafer PO, Thompson NJ, McGee R, Hatfield K. (2015).Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy & Behavior, 50:172-83.
doi: 10.1016/j.yebeh.2015.07.025

Escoffery C, Bamps YA, LaFrance WC, Stoll SC, Shegog R, Buelow J, Shafer PO, Thompson NJ, McGee R, Hatfield K. (2015).Factor Analyses of an Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy & Behavior, 50: 184-9.
doi: 10.1016/j.yebeh.2015.07.026
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Escoffery C, DiIorio C, Yeager KA, McCarty F, Robinson E, Reisinger E, Henry T, Koganti A. (2008). Use of computers and the Internet for health information by patients with epilepsy. Epilepsy & Behavior. 12(1):109-114.
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Sahoo S, Zhang GQ, Bamps Y, Fraser RT, Stoll SC, Lhatoo SD, Tatsuoka C, Welter E, Sajatovic M. (2015).Managing Information Well: Towards an Ontology-driven Informatics Platform for Data Sharing and Secondary Use in Epilepsy Self-Management Research Centers. Health Informatics Journal. [ePub ahead of print March 13, 2015]
doi: 10.1177/1460458215572924

Sahoo S, Ramesh P, Welter E, Bukach A, Valdez J, Tatsuoka C, Bamps Y, Stoll S, Jobst B, Sajatovic M.(in press). Insight: An Ontology-based Integrated Database and Analysis Platform for Epilepsy Self-Management Research. International Journal of Medical Informatics

Shegog R, Bamps Y, Escoffery C, Ilozumba O, Johnson EK, Kakacek J, Patel A. (2013). Managing Epilepsy Well: Emerging eTools for epilepsy self-management. Epilepsy & Behavior. 29(1):133–140.
doi: 10.1016/j.yebeh.2013.07.002
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Healthcare Costs

Lairson  DR, Begley CE, Basu R, Reynolds T. (2009). Concordance of survey and billing data in a study of outpatient healthcare cost and utilization among epilepsy patients. Epilepsy Research. 87(1):59-69.
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Mental Health

Chen JJ, Caller TA, Mecchella J, Thakur DS, Homa K, Finn C, Kobylarz EJ, Bujarski KA, Thadani VM, Jobst BC.(2014). Reducing severity of comorbid psychiatric symptoms in an epilepsy clinic using a colocation model: Results of a pilot intervention. Epilepsy & Behavior. 39:92-6.
doi: 10.1016/j.yebeh.2014.07.015
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Kobau R, Cui W, Kadima N, Zack MM, Sajatovic M, Kaiboriboon K, Jobst B. (2014). Tracking psychosocial health in adults with epilepsy — Estimates from the 2010 National Health Interview Survey. Epilepsy & Behavior. 41:66-73.
doi: 10.1016/j.yebeh.2014.08.002
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Reisinger EL, DiIorio C. (2009). Individual, seizure-related, and psychosocial predictors of depressive symptoms among people with epilepsy over six months. Epilepsy & Behavior. 15(2):196-201.
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Robinson E, DiIorio C, DePadilla L, McCarty F, Yeager K, Henry T, Schomer D, Shafer PO. (2008). Psychosocial predictors of lifestyle management in adults with epilepsy. Epilepsy & Behavior. 13(3):523-8.
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Thompson, N. J., McGee, R. E., Munoz, L. C., & Walker, E. R.  (2015, in press).  Reflections on mental health advocacy across differing ecological levels. Journal of the Georgia Public Health Association, 5(1): 126-134.

Thompson NJ, McGee R, Walker ER. (Accepted). Distance Delivery of Mindfulness-Based Cognitive Therapy. In Eisendrath S (ed.) Mindfulness-Based Cognitive Therapy: Innovative Applications, Springer, New York.

Walker ER, Engelhard G, Thompson, NJ. (2012).Using Rasch measurement theory to assess three depression scales among adults with epilepsy. Seizure. 21(6):437-43.
doi: 10.1016/j.seizure.2012.04.009
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MEW Network

Sajatovic, Martha, Barbara C. Jobst, Ross Shegog, Yvan A. Bamps, Charles E. Begley, Robert T. Fraser, Erica K. Johnson, et al. “The Managing Epilepsy Well Network:: Advancing Epilepsy Self-Management.” American Journal of Preventive Medicine, Prevention Research Centers Program – 30th Anniversary: Translating Applied Public Health Research into Policy and Practice, 52, no. 3, Supplement 3 (March 2017): S241–45.
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DiIorio C, Bamps Y, Edwards AL, Escoffery C, Thompson NJ, Begley CE, Shegog R, Clark NM, Selwa L, Stoll S, Fraser RT, Ciechanowski P, Johnson EK, Kobau R, Price PH. (2010). The Prevention Research Centers' Managing Epilepsy Well Network. Epilepsy & Behavior. 19(3):218-224.
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Kobau R, Price P, Giles HW, Pennell P, Hargis E. (2010). Forward/Editorial: Centers for Disease Control and Prevention Managing Epilepsy Well Network. Epilepsy & Behavior. 19(3):216-7.
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Kobau R, Price P, Hawkins NA. (2012). News from CDC: Translating epilepsy self-management research to practice. Translational Behavioral Medicine: Practice, Policy and Research 2(2):124-5.
doi: 10.1007/s13142-012-0122-y
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MEW Programs

Begley C, Shegog R, Harding A, Goldsmith C, Omotola H, Newmark M. (2015). Longitudinal feasibility of MINDSET: A clinic decision aid for epilepsy self-management. Epilepsy & Behavior, 44, 143-50.
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Caller TA, Secore KL, Ferguson RJ, Roth RM, Alexandre FP, Henegan PL, Harrington JJ, & Jobst JC. (2015).Design and feasibility of a memory intervention with focus on self-management for cognitive impairment in epilepsy. Epilepsy & Behavior 44: 192-194.
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Caller TA, Secore KL, Ferguson RJ, Roth RM, Secore KL, Alexandre FP, Zhao W, Tosteson T,Henegan PL, Birney K & Jobst JC.(2016). A cognitive-behavioral intervention (HOBSCOTCH) improves quality of life and attention in epilepsy: a pilot study.  Epilepsy & Behavior, 57(Pt A):111-7.
doi: 10.1016/j.yebeh.2016.01.024

Chaytor N, Ciechanowski P, Miller JW, Fraser R, Russo J, Unutzer J, Gilliam F.(2011) Long-term outcomes from the PEARLS randomized trial for the treatment of depression in patients with epilepsy. Epilepsy & Behavior. Volume 20(3):545-549.
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Ciechanowski P, Chaytor N, Miller J, Fraser R, Russo J, Unutzer J, Gilliam F. (2010). PEARLS depression treatment for individuals with epilepsy: A randomized controlled trial. Epilepsy & Behavior. 19(3):225-231.
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DiIorio C, Bamps Y, Escoffery C, Reisinger-Walker E. (2011). Results of a randomized controlled trial: Evaluating WebEase, an online epilepsy self-management program. Epilepsy & Behavior. 22(3):469-474.
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DiIorio C, Escoffery C, McCarty F, Yeager KA, Henry TR, Koganti A, Reisinger E, Wexler B. (2009). Evaluation of WebEase: An epilepsy self-management website. Health Education Research. 24(2):185-197.
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DiIorio C, Escoffery C, Yeager KA, McCarty F, Henry TR, Koganti A, Reisinger E, Robinson E, Kobau R, & Price P. (2009). WebEase: development of a web-based epilepsy self-management intervention. Preventing Chronic Disease. 6(1):A28.
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DiIorio C, Reisinger EL, Yeager KA, & McCarty F. (2009). A telephone-based self-management program for people with epilepsy. Epilepsy & Behavior. 14(1):232-236.
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Fraser R, Johnson EK, Lashley S, Barber J, Chaytor N, Miller JW, Ciechanowski P, Temkin N, Caylor L.(2015).PACES in epilepsy: Results of a self-management randomized controlled trial. Epilepsia. 2015 Jun 29. [Epub ahead of print]
doi: 10.1111/epi.13052
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Reisinger Walker E, Bamps Y, Burdett A, DiIorio C, Rothkopf J. (2012). Social support for self-management behaviors among people with epilepsy: A content analysis of the WebEase program. Epilepsy & Behavior. 23(3):285-90.
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Reisinger EL, Welxer B, DiIorio C, Escoffery C, McCarty F, & Yeager KA. (2009). Content and characteristics of goals created during a self-management intervention for people with epilepsy. Journal of Neuroscience Nursing. 41(6):312-21.
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Reisinger Walker E, DiIorio C. (2010). Depression in people with epilepsy. In J Pinikahana, C Walker  (Eds.), Society, Behaviour and Epilepsy. Nova Publishers.

Reisinger Walker E, Obolensky N, Dini S, Thompson, NJ. (2010). Formative and process evaluations of a CBT and mindfulness intervention for people with epilepsy and depression. Epilepsy & Behavior. 19(3):239-46.
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Shegog R, Begley C, Harding A, Dubinsky S, Goldsmith C, Hope O, Newmark, M. (2013). Description and feasibility of MINDSET: A clinic decision aid for epilepsy self-management, Epilepsy & Behavior. 29(3):527-36.

Shegog R, Begley C.  (accepted). MINDSET: A clinic-based Management INformation Decision Support Epilepsy Tool for adult patients and their providers. In Parvanta CF (ed.) Public Health Communication: New Strategies, Media & Tools.

Thompson NJ, Patel A, Begley C, Fraser R, Johnson E, Selwa L, Stoll S. (2014). Expanding the Efficacy of Project UPLIFT: Distance Delivery of Mindfulness-based Depression Prevention to People with Epilepsy. Journal of Consulting and Clinical Psychology.
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Thompson NJ, Reisinger Walker E, Obolensky N, Winning A, Barmon C, DiIorio C, Compton M. (2010). Distance Delivery of mindfulness-based cognitive therapy for depression: Project UPLIFT. Epilepsy & Behavior. 19(3):247-54.
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Needs Assessments

Clark NM, Stoll S, Sweetman M, Youatt EJ, Derry R, Gorelick A. (2010). Fostering epilepsy self-management: The perspectives of professionals. Epilepsy & Behavior. 19(3):255-263.
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Fraser RT, Johnson EK, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P, Chaytor N. (2011). Managing epilepsy well: Self-Management needs assessment. Epilepsy & Behavior. 20(2):291-8.
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Johnson EK. (2012). Perspectives on work for people with epilepsy. In IZ Schultz, R Gatchel (Eds.). Handbook of Return-to-Work. New York: Springer.

Johnson EK, Fraser RT, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P. (2012). A comparison of epilepsy self-management needs: Provider and patient perspectives. Epilepsy & Behavior. 25(2):150-5.
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Quality of Life

Kobau R, Luncheon C, Zack MM, Shegog R, Price P. (2012). Satisfaction with life domains in people with epilepsy. Epilepsy & Behavior. 25(4):546-51.
doi: 10.1016/j.yebeh.2012.09.013
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Specific Populations

Begley CE, Basu R, Reynolds T, Lairson DR, Dubinsky  S, Newmark M, Barnwell F, Hauser A, Hesdorffer D, Hernandez N, Karceski SC, Shih T. (2009). Sociodemographic disparities in epilepsy care: Results from the Houston/New York City healthcare use and outcomes study. Epilepsia. 50(5)1040-50.
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Begley CE, Shegog R, Iyagba B, Chen V, Dubinsky S, Newmark M, Ojukwu N, Friedman D. (2010). Socioeconomic status and self-management in epilepsy: Comparison of diverse clinical populations in Houston, TX. Epilepsy & Behavior. 19(3):232-238.
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Fraser R, Johnson E, Ehde D, Bishop M. (2009). Patient self-management in multiple sclerosis: Consortium of multiple sclerosis centers. Available from

Hunter-Jones J, Nellum A, Olorundare E, McCloud C, McCurdy M, McGee R, Davis C, Thompson N and Quarells R. Assessing the Cultural Appropriateness of UPLIFT for African Americans: A Community Engaged Approach. Journal of the Georgia Public Health Association. In press.



Kobau R, DiIorio C, Thompson N, St. Louis E, Bamps Y. (2014). Implications for understanding and combating stigma. In D Ficker, T O’Brien (Eds.),  Epilepsy and the Interictal State: Co-morbidities and Quality of Life. St Louis, MO: Wiley- Blackwell. (in press).

Leaffer EB, Hesdorffer D, Begley C.(2014) Psychosocial and sociodemographic associates of felt stigma in epilepsy. Epilepsy & Behavior, 37:104-9.
doi: 10.1016/j.yebeh.2014.06.006
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Youth and Young Adults with Epilepsy

Escoffery C, McGee RE, Bamps Y and Helmers SL. (2016).Differences in Epilepsy Self-ManagementBehaviors among Young and Older Adults. Austin J Neurol Disord Epilepsy, 3(1): 1015.

Wagner JL, Modi AC, Johnson EK, Shegog R, Escoffery C, Bamps Y, Austin JK, Schultz RJ, MapelLentz S, Smith G. Self-management interventions in pediatric epilepsy: What is the level of evidence?Epilepsia2017 May;58(5):743-754.

MEW Reports

CDC PRC Brochure on the Managing Epilepsy Well Network

National Center for Chronic Disease Prevention and Health Promotion (Centers for Disease Control and Prevention). (December 2013). Managing Epilepsy Well: Putting Collective Wisdom to Work for People with Epilepsy

Center for Managing Chronic Disease (University of Michigan). (March 2010). Contributing to Managing Epilepsy Well. Key Informants’ Perspectives on Managing Epilepsy Report.



MEW Network