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Begley  CE, Basu R, Reynolds T, Lairson DR, Dubinsky  S, Newmark M, Barnwell F, Hauser A, Hesdorffer D, Hernandez N, Karceski SC, Shih T. (2009). Sociodemographic disparities in epilepsy care: Results from the Houston/New York City healthcare use and outcomes study. Epilepsia, May;50(5):1040-50. Epub 2008 Nov 17.
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Begley CE, Shegog R, Iyagba B, Chen V, Dubinsky S, Newmark M, Ojukwu N, Friedman D. (2010).Socioeconomic Status and Self-Management in Epilepsy: Comparison of Diverse Clinical Populations in Houston, TX. Epilepsy & Behavior, Volume 19(3): 232-238 .
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Begley C, Shegog R, Harding A, Goldsmith C, Omotola H, Newmark M. (2015). Longitudinal feasibility of MINDSET: A clinic decision aid for epilepsy self-management. Epilepsy & Behavior, 44, 143-50.
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Caller TA, Secore KL, Ferguson RJ, Roth RM, Alexandre FP, Henegan PL, Harrington JJ, & Jobst JC. Design and feasibility of a memory intervention with focus on self-management for cognitive impairment in epilepsy. Epilepsy & Behavior 44 (2015): 192-194.
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Caller TA, Secore KL, Ferguson RJ, Roth RM, Secore KL, Alexandre FP, Zhao W, Tosteson T,Henegan PL, Birney K & Jobst JC.(2016). A cognitive-behavioral intervention (HOBSCOTCH) improves quality of life and attention in epilepsy: a pilot study.  Epilepsy & Behavior, 57(Pt A):111-7.
doi: 10.1016/j.yebeh.2016.01.024

Chaytor N, Ciechanowski P, Miller JW, Fraser R, Russo J, Unutzer J, Gilliam F.(2011) Long-term outcomes from the PEARLS randomized trial for the treatment of depression in patients with epilepsy. Epilepsy & Behavior.Volume 20(3):545-549.
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Chen JJ, Caller TA, Mecchella J, Thakur DS, Homa K, Finn C, Kobylarz EJ, Bujarski KA, Thadani VM, Jobst BC.(in press). Reducing Severity of Comorbid Psychiatric Symptoms in an Epilepsy Clinic using a Co-location Model: Results of a Pilot Intervention. Epilepsy & Behavior
doi: 10.1016/j.yebeh.2014.07.015
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Ciechanowski P, Chaytor N, Miller J, Fraser R, Russo J, Unutzer J, Gilliam F.(2010).PEARLS Depression Treatment for Individuals with Epilepsy: A Randomized Controlled Trial. Epilepsy & Behavior, Volume 19(3): 225-231.
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Clark NM, Stoll S, Sweetman M, Youatt EJ, Derry R, Gorelick A. (2010). Fostering Epilepsy Self-Management: The Perspectives of Professionals. Epilepsy & Behavior, Volume 19(3): 255-263.
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DiIorio C, Reisinger E, Yeager K, Schomer DL, Henry TR, & Shafer PO. (2008). A descriptive analysis of seizure events among adults who participated in a computer-based assessment. Journal of Neuroscience Nursing. 40,124-141.
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DiIorio C, Escoffery C, McCarty F, Yeager KA, Henry TR, Koganti A, Reisinger E, & Wexler B. (2009). Evaluation of WebEase: an epilepsy self-management web site. Health Education Research, 24(2),185-197.
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DiIorio C, Escoffery C, Yeager KA, McCarty F, Henry TR, Koganti A, Reisinger E, Robinson E, Kobau R, & Price P.  (2009). WebEase: development of a web-based epilepsy self-management intervention. Preventing Chronic Disease, 6(1), A28.
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DiIorio C, Reisinger EL, Yeager KA, & McCarty F. (2009). A telephone-based self-management program for people with epilepsy.  Epilepsy & Behavior, Volume 14(1), 232-236.
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DiIorio C, Bamps Y, Edwards AL, Escoffery C, Thompson NJ, Begley CE, Shegog R, Clark NM, Selwa L, Stoll S, Fraser RT, Ciechanowski P, Johnson EK, Kobau R, Price PH. (2010). The Prevention Research Centers' Managing Epilepsy Well Network. Epilepsy & Behavior, Volume 19(3): 218-224.
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DiIorio C, Bamps Y, Escoffery C, Reisinger-Walker E (2011). Results of a Randomized Controlled Trial: Evaluating WebEase, an Online Epilepsy Self-Management Program. Epilepsy & Behavior, 22(3): 469-474.
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Escoffery C, DiIorio C, Yeager KA, McCarty F, Robinson E, Reisinger E, Henry T, Koganti A. (2008). Use of computers and the Internet for health information by patients with epilepsy.  Epilepsy & Behavior, Volume 12(1), 109-114.
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Escoffery C, Bamps YA, LaFrance WC, Stoll SC, Shegog R, Buelow J, Shafer PO, Thompson NJ, McGee R, Hatfield K. Escoffery C, Bamps YA, LaFrance W, Stoll SC, Shegog R, Buelow J, Shafer PO, Thompson NJ, McGee R, Hatfield K. (2015).Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI), 50:172-83.
doi: 10.1016/j.yebeh.2015.07.025

Escoffery C, Bamps YA, LaFrance WC, Stoll SC, Shegog R, Buelow J, Shafer PO, Thompson NJ, McGee R, Hatfield K. (2015).Factor Analyses of an Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy & Behavior, 50: 184-9.
doi: 10.1016/j.yebeh.2015.07.026
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Escoffery C, McGee RE, Bamps Y and Helmers SL. (2016).Differences in Epilepsy Self-ManagementBehaviors among Young and Older Adults. Austin J Neurol Disord Epilepsy, 3(1): 1015.


Fraser R, Johnson E, Ehde D, Bishop M. (2009) Patient Self-Management in Multiple Sclerosis: Consortium of Multiple Sclerosis Centers; 2009. Available from:

Fraser RT, Johnson EK, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P, Chaytor N. (2011). Managing Epilepsy Well: Self-Management Needs Assessment. Epilepsy & Behavior, Volume 20, Issue 2, 291-8.
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Fraser R, Miller J, Johnson E. "Epilepsy" (2011) In: Flanagan S, Zaretsky H, Moroz A, editors. Medical Aspects of Disability: A Handbook for the Rehabilitation Professional: Springer Publishing Company; 2011. p. 177-94.

Fraser RT, Miller JW, Johnson EK (2014). "Epilepsy" in M.G. Brodwin (Ed.), Medical, Psychosocial and Vocational Aspects of Disability. Athens, GA: Elliott & Fitzpatrick.

Fraser, R.T., Ehde, D., Amtmann, D., Verrall, A., Johnson, K.L., Johnson, E.K., et al. (2013). Self-management for persons with multiple sclerosis: Report from the First International Consensus Conference. International Journal of MS Care., 15.
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Fraser R., Strand D, Johnson EK, & Johnson C. (2012). Applying neuropsychology in vocational rehabilitation intervention: Issues in work access and work return. In S. Bush & G. Iverson (Eds.), Neuropsychological Assessment of Work-Related Injuries. New York: Guilford.

Fraser R, Johnson EK, Lashley S, Barber J, Chaytor N, Miller JW, Ciechanowski P, Temkin N, Caylor L.(2015).PACES in epilepsy: Results of a self-management randomized controlled trial. Epilepsia. 2015 Jun 29. [Epub ahead of print]
doi: 10.1111/epi.13052
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Helmers, S. L., Kobau, R., Sajatovic, M., Jobst, B. C., Privitera, M., Devinsky, O., Labiner, D., et al. (2017). Self-management in epilepsy: Why and how you should incorporate self-management in your practice.Epilepsy & Behavior, February 12, 2017.
doi: 10.1016/j.yebeh.2016.11.015

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Hunter-Jones J, Nellum A, Olorundare E, McCloud C, McCurdy M, McGee R, Davis C, Thompson N and Quarells R. Assessing the Cultural Appropriateness of UPLIFT for African Americans: A Community Engaged Approach. Journal of the Georgia Public Health Association. In press.


Johnson EK, Fraser RT, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P. (2012). A Comparison of Epilepsy Self-Management Needs: Provider and Patient Perspectives. Epilepsy & Behavior, 25(2), 150-5. Epub 2012 Sep 29.
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Johnson EK (2012). Perspectives on work for people with epilepsy. In Schultz IZ and Gatchel R(Eds.), Handbook of Return-to-Work. New York: Springer.


Kobau R, Price P, Giles HW, Pennell P, Hargis E. (2010). Forward/Editorial: Centers for Disease Control and Prevention Managing Epilepsy Well Network. Epilepsy & Behavior, Volume 19(3): 216-217.
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Kobau R, DiIorio C, Thompson N, St. Louis E, Bamps Y. (December 2014). "Implications for Understanding and Combating Stigma” in St Louis E, Ficker D, O’Brien, T eds.  Epilepsy and the Interictal State: Co-morbidities and Quality of Life, Wiley- Blackwell.

Kobau R, Price P, Hawkins NA. (2012). News From the CDC: Translating Epilepsy Self-management Research to Practice. Translational Behavioral Medicine: Practice, Policy and Research. [ePub ahead of print]
doi: 10.1007/s13142-012-0122-y
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Kobau R, Luncheon C, Zack MM, Shegog R, Price P. (2012) Satisfaction with life domains in people with epilepsy. Epilepsy & Behavior, 25(4):546-51.
doi: 10.1016/j.yebeh.2012.09.013
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Kobau R, Kadima NT, Helmers S, Zack M. (2013). Comorbidity in Adults with Epilepsy — United States, 2010. Morbidity and Mortality Weekly Report, November 1, Vol. 62 / No. 43, 859-835.
Available online at:

Kobau R, Cui W, Kadima N, Zack MM, Sajatovic M, Kaiboriboon, Jobst B. (2014). Tracking psychosocial health in adults with epilepsy—Estimates from the 2010 National Health Interview Survey, Epilepsy Behav. 41:66-73.
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LaFrance W, Ranieri R, Bamps Y , S Stoll SC, Sahoo SS, Welter E, Sams J, Tatsuoka C, Sajatovic M.(2015).Comparison of common data elements from the Managing Epilepsy Well (MEW) Network integrated database and a well-characterized sample with nonepileptic seizures. Epilepsy & Behavior. 45: 136-141. doi:10.1016/j.yebeh.2015.02.021

Lairson  DR, Begley CE, Basu R, Reynolds T. (2009). Concordance of Survey and Billing Data in a Study of Outpatient Healthcare Cost and Utilization among Epilepsy Patients. Epilepsy Research. 87(1):59-69. Epub 2009 Aug 25.
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Leaffer EB, Hesdorffer D, Begley C.(2014) Psychosocial and sociodemographic associates of felt stigma in epilepsy. Epilepsy & Behavior, 37:104-9.
doi: 10.1016/j.yebeh.2014.06.006
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Reisinger EL & DiIorio C. (2009). Individual, seizure-related, and psychosocial predictors of depressive symptoms among people with epilepsy over six months. Epilepsy & Behavior, Volume 15 (2), 196-201.
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Reisinger EL, Welxer B, DiIorio C, Escoffery C, McCarty F, & Yeager KA.(2009). Content and  characteristics of goals created during a self-management intervention for people with epilepsy.  Journal of Neuroscience Nursing, 41(6), 312-321.
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Reisinger Walker E, Obolensky N, Dini S, Thompson, NJ. (2010). Formative and process evaluations of a CBT and mindfulness intervention for people with epilepsy and depression. Epilepsy & Behavior, Volume 19(3): 239-246.
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Reisinger Walker E, DiIorio C. (2010) " Depression in People with Epilepsy." in Pinikahana J & Walker C (eds). Society, Behaviour and Epilepsy. Nova Publishers.

Reisinger Walker E, Bamps Y, Burdett A, DiIorio C, Rothkopf J. (2012). Social support for self-management behaviors among people with epilepsy: A content analysis of the WebEase program. Epilepsy & Behavior.[Epub ahead of Print 2012 February 23].
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Robinson E, DiIorio C, DePadilla L, McCarty F, Yeager K, Henry T, Schomer D, & Shafer PO. (2008). Psychosocial predictors of lifestyle management in adults with epilepsy. Epilepsy & Behavior, Volume 13(3), 523-528.
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Sahoo S, Zhang GQ, Bamps Y, Fraser RT, Stoll SC, Lhatoo SD, Tatsuoka C, Welter E, Sajatovic M. (2015).Managing Information Well: Towards an Ontology-driven Informatics Platform for Data Sharing and Secondary Use in Epilepsy Self-Management Research Centers. Health Informatics Journal. [ePub ahead of print March 13, 2015]
doi: 10.1177/1460458215572924

Sahoo S, Ramesh P, Welter E, Bukach A, Valdez J, Tatsuoka C, Bamps Y, Stoll S, Jobst B, Sajatovic M.(in press). Insight: An Ontology-based Integrated Database and Analysis Platform for Epilepsy Self-Management Research. International Journal of Medical Informatics

Sajatovic, Martha, Barbara C. Jobst, Ross Shegog, Yvan A. Bamps, Charles E. Begley, Robert T. Fraser, Erica K. Johnson, et al. “The Managing Epilepsy Well Network:: Advancing Epilepsy Self-Management.” American Journal of Preventive Medicine, Prevention Research Centers Program – 30th Anniversary: Translating Applied Public Health Research into Policy and Practice, 52, no. 3, Supplement 3 (March 2017): S241–45.
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Shegog R, Bamps Y, Escoffery C, Ilozumba O, Johnson EK, Kakacek J, Patel A.(2013). Managing Epilepsy Well: Emerging eTools for Epilepsy Self-management. Epilepsy & Behavior, Volume 29: 133–140.
doi: 10.1016/j.yebeh.2013.07.002
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Shegog R, Begley C, Harding A, Dubinsky S, Goldsmith C, Hope O, Newmark, M. (2103). Description and feasibility of MINDSET: A clinic decision aid for epilepsy self-management, Epilepsy & Behavior, Available online 24 October 2013.

Shegog R, Begley C.  (in press). MINDSET: A clinic-based Management INformation Decision Support Epilepsy Tool for adult patients and their providers. In Parvanta CF (ed.) Public Health Communication: New Strategies, Media & Tools.


Thompson NJ, Reisinger Walker E, Obolensky N, Winning A, Barmon C, DiIorio C, Compton M.(2010). Distance Delivery of Mindfulness-based Cognitive Therapy for Depression: Project UPLIFT. Epilepsy & Behavior, Volume 19(3): 247-254.
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Thompson NJ, Patel A, Begley C, Fraser R, Johnson E, Selwa L, Stoll S.(2014). Expanding the Efficacy of Project UPLIFT: Distance Delivery of Mindfulness-based Depression Prevention to People with Epilepsy. Journal of Consulting and Clinical Psychology.
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Thompson NJ, McGee RE., Munoz LC & Walker ER.  (2015, in press).  Reflections on mental health advocacy across differing ecological levels. Journal of the Georgia Public Health Association, 5(1): 126-134.

Thompson NJ, McGee R, Walker ER. (Accepted). Distance Delivery of Mindfulness-Based Cognitive Therapy. In Eisendrath S (ed.) Mindfulness-Based Cognitive Therapy: Innovative Applications, Springer, New York.


Wagner JL, Modi AC, Johnson EK, Shegog R, Escoffery C, Bamps Y, Austin JK, Schultz RJ, MapelLentz S, Smith G. Self-management interventions in pediatric epilepsy: What is the level of evidence?Epilepsia2017 May;58(5):743-754.

Walker ER, Engelhard G, & Thompson, NJ.  (2012 ).  Using Rasch measurement theory to assess three depression scales among adults with epilepsy.  Seizure: European Journal of Epilepsy.Seizure, 21(6), 437-443
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