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Self-management in pediatric epilepsy (June 2013-present)

Goal: The goal of this workgroup is to identify the domains of epilepsy management in pediatric epilepsy and to consider transition issues from family-centered to independent epilepsy self-management (SM) from a developmental perspective. Three initial tasks are proposed: 1) Systematically review the current literature on pediatric epilepsy SM interventions; 2) Prepare a publication as an update the review of psychosocial interventions by Wagner & Smith (2006)*; and 3) In consultation with the adult self-management questionnaire recently developed by MEW, consider and write potential questions that represent the domains of SM in youth with epilepsy and their families.
* Wagner JL, Smith G. Psychosocial intervention in pediatric epilepsy: a critique of the literature. Epilepsy Behav 2006;8(1):39-49.

Members:

Associated members, literature review (January 2014-Present):

  • Rebecca H. Bitsko, PhD (Centers for Disease Control and Prevention)
  • Rebecca T. Leeb, PhD (Centers for Disease Control and Prevention)
  • Avani C. Modi, PhD (Cincinnati Chrildren's Hospital)
  • Rebecca J. Schultz, Ph.D., RN, CPNP (Baylor College of Medicine)

 

MEW Network article (November 2015 -Present)

Goal: To produce several article on the research and dissemination activities of the MEW Network

Members:

 

MEW Dissemination(March 2016-Present)

Goal: To identify and share best practices on effective program implementation and dissemination strategies.

Members:


 

 

MEW Network