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Online Resources

Organizations

There are many organizations that work to improve the lives of people with epilepsy. Follow these links to learn more and connect:

American Epilepsy Society

The American Epilepsy Society is a network that promotes research and education for professionals dedicated to the prevention, treatment, and cure of epilepsy.

Centers for Disease Control and Prevention: Epilepsy

The CDC Epilepsy Program’s addresses public health issues to improve the health of people living with epilepsy, especially those at greater risk for health difficulties; improve their quality of life; and decrease stigma
.

Citizens United for Research in Epilepsy (CURE)

CURE is a nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research.

EpilepsyAdvocate.com

Epilepsy Advocate provides information and resources for people living with epilepsy including the types and causes of seizures as well as inspirational stories from advocates and scholarship programs.

Epilepsy Foundation

Epilepsy Foundation is a community-based organization that offers educational, support, and advocacy programs and services for people with epilepsy, loved ones, health professionals, researchers, and others to improve the lives of people with epilepsy.

Mental Health First Aid

Mental Health First Aid teaches you how to help someone who is developing a mental health problem or experiencing a mental health crisis. The training helps you identify, understand, and respond to signs of addictions and mental illnesses.

www.mentalhealthfirstaid.org/cs/

Key publications

These reports address a wide range of epilepsy topics and make recommendations to advance progress in care and research.


Epilepsy Across the Spectrum: Promoting Health and Understanding (Institute of Medicine, March 2012)

Living Well with Epilepsy II

My Seizures Know More Tool

People with epilepsy can use this tool to learn about their concerns and how an epilepsy specialist might help them.

www.myseizuresknowmore.com


Empowering people living with epilepsy to seek more specialized epilepsy care if they are having seizures, side-effects from drugs, other health problems, or social or educational issues.

 

 

 

 

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