MINDSET:

Self-Management Epilepsy Decision Support for Adult People with Epilepsy and Their Providers

A clinical decision aid for adults with epilepsy


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Program Snapshot

 
 

Key Components


  • Tablet-based decision aid for use in the clinic visit to assist people with epilepsy (PWE) and health care providers in assessing the patient’s epilepsy self-management (S-M) behavior for seizures, medications, and lifestyle.

  • Helps PWE select achievable S-M goals and strategies that match their needs and preferences.

  • Promote shared clinician-patient decision making, improve quality of medical decisions, and reduce costs.


 

Program Description

MINDSET is a tablet-based decision aid for use in an outpatient healthcare setting to assist both the patients and their health care providers (HCPs) in assessing the patient’s epilepsy self-management behaviors relating to seizures, medications, and lifestyle.

MINDSET has 3 stages:

  1. Data input – The participant completes this stage while in a clinic waiting area prior to an appointment.  They input into a tablet a wide array of information relating to their seizures, medications, and lifestyle behaviors. 

  2. Self Assessment – MINDSET then produces a profile for the participant to bring into their appointment to review with their healthcare provider. This profile 1)  flags low frequency self-management behaviors 2) prompts selection of up to three self-management goals for completion before the next clinic visit and 3) prompts selection of behavioral strategies and assessment of self-efficacy.

  3. Review and Discussion – The patient and the Healthcare Provider together review a printed Action Plan that includes the selected goals and strategies. If there are no flagged behaviors a text-based congratulatory message is provided.

Reasoning behind MINDSET:

  1. Self-assessment by PWE increases their awareness of the breadth of S-M issues.

  2. S-M goals selected by PWE match their needs and preferences.

  3. Identifying practical strategies makes S-M easier for PWE to achieve.

  4. Collaborative patient-provider decision-making can enhance epilepsy S-M.

  5. Action plans reinforce the clinic discussion and provide ongoing

    guidance beyond the clinic.

MINDSET is designed for use during a regular clinic visit to:

  • Increase awareness of PWE and their HCPs regarding self-management.

  • Identify S-M behaviors needing improvement

  • Enable PWE to select seizure, medication, and lifestyle self-management goals

  • Enable PWE to select behavioral strategies to accomplish their goals

  • Identify the self-efficacy of PWE to achieve their goals.

  • Focus the patient-provider communication on achievable behavioral goals during clinic visits.

Target Population

English and Spanish speaking adults (18 years of age) with epilepsy, and their health care providers.

Resource Requirements

Tablet or laptop platform with internet and printer connectivity.

Staff that are knowledgeable about epilepsy, familiar with the tablet or laptop platform, and can explain and facilitate program completion.

A 10-minute phone call to review progress is recommended 2 weeks after the clinic visit.

Facilitators

Combination of self-administration and follow-up with a healthcare provider in a clinic setting.

Training Requirements

There are currently no formal training sessions.

A user manual provides information on downloading and opening MINDSET, action plan printing, and data storage.

An instruction manual provides information for health care providers on MINDSET contents and the process of reviewing and discussing the action plan with patients.

 
 
 
 

Program Contact

To learn more about adopting this program, or find out if it is available to you, contact:

Jenny Chong, PhD (University of Arizona)

(520) 626-1986

Ross Shegog, PhD (University of Texas)

(713) 500-9677

 
 

Availability

Tucson, AZ

Houston, TX